My shop has been closed for a little while..... I just haven't had the 'brain space' to deal with designs, photographs and metal. I will however be reopening next week..... once the children are gone back to school. I hope to be able to find my balance again, in the hammering of metal and my equilibrium in the polishing of silver and the setting of gorgeous stones.
One thing that has been semi resolved is Ruairi's developmental delays....... rather the search for answers has reached a dead end for the moment. All the test results came back clear...... you might say WHOOOOP! I did for a day or two.... and then the questions started coming.... why isn't he talking? Why does he walk with the balance of baby taking their first steps? etc. etc. etc.
'He is Himself'............
The paediatrician says 'he is himself......' he has his own IQ and will reach his own potential..... whatever they may be are just not clear at the moment.
I was told by various health professionals that 50% of children with learning/developmental difficulties or delays remain undiagnosed..... Medicine just simply does not know.........
I found it hard to accept... How could medicine 'Not know'? I was finally counciled by a doctor that I attend for my own depression. Because he is a specialist in mental health problems he knows the system. He advised me to stop looking for a label or a reason. A 'name' won't help Ruairi..... there is no medicine that goes with developmental delays..... only treatment. And Ruairi will get ALL the treatment he needs, regardless of diagnosis or not....
He will attend physio therapy, speech therapy and occupational therapy for his sensory issues, and closer to school going age he will be re assessed for his needs..... we had a developmental test yesterday which shows that he has the communication skills of an 18 month old and the phyical skills of a 24 month old (he is 35 months old and will turn three next month.) Heartbreaking..... but he is himself......... :-(
Meanwhile the other children are steaming ahead with life.... the tooth fairy had to visit twice this week!!!
8 comments:
sending lots of hugs and prayers that things will be ok...hang in there sweetie...
Oh Louise, I'm so sorry. It does seem you've had your more than your share of difficulties lately. Mingled you've found some solace with some of it. And I will tell you from experience that a diagnosis really doesn't help all that much when it comes do developmental delays. Our favorite neurologist used to answer all our questions about "what's typical for kids who have HPE?" with "Alice is Alice."
One positive about not having a diagnosis is that every professional who deals with Ruairi will have to truly see *him* and not just his diagnosis. We've found that a lot of times, once someone hears a diagnosis, they focus on that and look for and expect certain things. But with no diagnosis, they'll have to just look to Ruairi. It might be a blessing.
Lots of love to you and your family and here's to a less dramatic 2012!! Xo
Ugh, sorry about the autocorrects. Darn iPhone.
yeah, I know what he means by "stop looking for a label or a reason".. like I somehow feel some sort of peace and security from "knowing".. but there's lots in life we don't and can't know, and I'm realising more and more that a happy, peaceful life comes from taking one day at a time, relishing each day to the full, and trusting God with tomorrow. every child is unique, and I think Ruairi is doing things his own special way :) you and your family are in my prayers, big hug.
o I forgot to add: pop by my blog to see the little new year's present I "awarded" you :)
louise..I have never seen a happier little face minus 2 teeth....he is an amazing and unique child whose inner light shines like a beacon....hugs to you for being a strong, supportive and loving mama in uneasy times. Prayer has taken me through some of the darkest passages of my life and my children's lives. There are still many challenges and struggles ahead but we'll go through together....with divine entities as our guides. Hugs to you and Ruairi ❤
ola coragem tudo vai melhorar. beijo
Thinking of you, Louise! Having gone with my second daughter through a terrible bullying incident 4 years in her school that nearly cost her mental and physical health, I can only say that there are no rational answers to things like this. "He is himself" says it all. With the love and support of your family, he will develop at his own pace and turn into the wonderful, beautiful boy he is meant to be. Sending you my love :-)
Post a Comment